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Report of E-Rare Strategic Workshop March, 2016

Report of E-Rare Strategic Workshop March, 2016

The E-Rare Strategic Workshop was organised on March 7, 2016 in Barcelona (Spain) to give input on themes of the coming Joint Transnational Calls JTC 2017 and JTC 2018, and to give input for the Strategic Research Agenda of E-Rare-3 (ERA-NET for Research Programmes on Rare Diseases) in relation to other initiatives on rare diseases in near and further future.
At the Workshop an overview of E-Rare and its activities in the past 10 years was presented by Daria Julkowska, E-Rare coordinator. Subsequently, several research agendas of ongoing and future initiatives for rare diseases were discussed (session 2) to get a broader scope of the rare disease research domain. In session 3 several stakeholders, each from their own perspective, indicated what is needed in rare disease research and where E-Rare can contribute significantly. This could imply a specific focus for funding in future Joint Transnational Calls (JTCs) of E-Rare but also suggestions for future activities of E-Rare in general. The focus of session 4 was how a future framework can be built for sustainable rare diseases research and the role of the E-Rare consortium in this framework: which scenarios for sustainable activities beyond E-Rare-3 are feasible.
The details of these sessions and the conclusions are presented in the following report.

E-Rare 2012 - Created by Toussaint Biger