This section is dedicate to all types of European Initiatives that are related to the research on rare diseases.
Policy & Ethics
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Corbel webinars -
European Platform for Patients' Organizations, Science and Industry -
Information Platform on European, National and Regional Research Systems and Policies -
New online knowledge-sharing platform on Rare Disease -
European Union Commitee of Experts on Rare Diseases -
European Information Network - Ethics in Medicine and Biology -
International Conference on Rare Diseases & Orphan Drugs -
International Rare Disease Research Consortium -
Data and policies for rare diseases
Looking for collaborations | Contact | Interactive FAQ |
If you are looking for collaborations E-Rare provides you with several search and communication tools.
For more information ABOUT E-Rare please contact:
E-Rare Coordinator
Daria JULKOWSKA
Tel.: +33(0) 1 78 09 80 78
+33(0) 6 20 14 13 81
daria.julkowska@agencerecherche.fr
Agence Nationale de la Recherche - ANR
Health & Biology Department
50 Avenue Daumesnil
75012 Paris, France
