This section is dedicate to all types of European Initiatives that are related to the research on rare diseases.

ICORD

ICORD

International Conference on Rare Diseases & Orphan Drugs

The idea of an ICORD Society was born when representatives of many different stakeholders met at the 1st International Conference on Rare Diseases and Orphan Drugs 2005 in Stockholm. Formation of the ICORD Society was a process where these stakeholders met and discussed ICORDs mission and aims in 2006 and 2007. The ICORD Society was formed on September 13 2007 in Brussels. The 1st ICORD conference was held in Stockholm, Sweden (ICORD 2005), with support by Karolinska Institutet in Stockholm, the National Institutes of Health (NIH) in the US and the Research Directorate General of the European Commission. The ICORD 2007 Annual Meeting was an open 2-day-meeting in Brussels Sept 14-15, 2007, held back-to back with the European Commission conference “Rare Diseases Research: Building on Success”. In conjunction with the ICORD 2007 Annual Meeting the ICORD society was formed. Aims :

  • To organise International Conferences on Rare Diseases and Orphan Drugs (ICORD)
  • To promote research, ethics, policies and actions on rare diseases and orphan products in all regions of the world
  • To facilitate and provide a global forum for all stakeholders for effective communication, formation of opinion and public debate, concerning rare diseases and orphan products
  • To enhance international discussion, cooperation and coordination of research, policies and actions of all bodies active in the field of rare diseases and orphan products
  • To exchange best practises between existing bodies and develop international approaches and tools to address common issues in rare diseases and orphan products

E-Rare 2012 - Created by Toussaint Biger