This section is dedicate to all types of European Initiatives that are related to the research on rare diseases.



Biobanking and Biomolecular Resources Research Infrastructure

Continuous improvement in the health of European citizens relies on biomedical research and on citizens who participate in that research. Over 200 organisations - including national funders - in 24 EU Member States are jointly planning an EU infrastructure to deliver different resources - the samples - the data - the tools.


BBMRI infrastructures already manage over 10 million samples. Our goals are to increase this number, to improve quality, to reduce fragmentation and to extend the reach of European researchers.


BBMRI will sustainably secure access to biological resources required for health-related research and development intended to improve the prevention, diagnosis and treatment of disease and to promote the health of the citizens of Europe.


The European Commission is funding this planning work (grant agreement 212111).


We welcome all bona fide researchers in the EU to contribute.

E-Rare 2012 - Created by Toussaint Biger