Welcome to the E-Rare Reports and Publications section. You will find here E-Rare Workshop Reports, Publications and Catalogs.


Monday, August 07 2017

Over the last two decades, important contributions were made at national, European and international levels to foster collaboration into rare diseases research. The European Union (EU) has put...

Monday, August 07 2017

Dr Daria Julkowska, E-Rare coordinator discusses the importance of rare diseases research with Gary Finnegan, the journalist of Horizon, The EU Research & Innovation Magazine.

Read the...

Wednesday, December 05 2012

Survey and Strategic Analysis on Future Themes and Needs for Rare Diseases Research Funding
In the European Council recommendation on rare diseases (RD), Member States are...

Wednesday, December 05 2012

Strategy Paper on Platforms for Rare Diseases Research. Next Generation Sequencing Platforms
The work undertaken during the E-Rare project was aimed at facilitating the links...

Sunday, April 08 2012

Research Programmes on Rare Diseases in the E-Rare Partner Countries
Networking of research programmes first requires mutual knowledge of specific conditions, strategies and...

E-Rare 2012 - Created by Toussaint Biger