PARADIGM, a collaborative IMI project that aims to make meaningful patient engagement in medicines development a reality. The objective is to develop processes and tools for three key decision-making points: research priority setting, design of clinical trials and early dialogue with regulators and HTA bodies. Share your opinion and experience on patient engagement NOW! Learn more HERE

 

The CORBEL Open Call invites researchers to apply to access technologies and services from more than 20 facilities from 10 different research infrastructures across Europe.
Learn more HERE

 

The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. See the publication HERE.

EU GDPR - we want to make sure you still want to hear from us!

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ERA-Net for Research Programmes on Rare Diseases
EU GDPR - we want to make sure you still want to hear from us!
Dear Colleagues,
As you may have heard, the new General Data Protection Regulation (GDPR) comes into effect May 25, 2018. Your privacy comes first!
 
As you are part of E-Rare community and has expressed interest in our calls, conferences and rare diseases related news OR registered into our "Looking for collaborations" database over the last years, we are sending this notice in order to inform you of E-Rare data processing activities in relation to your personal information.
 
E-Rare collects and processes personal information you provided. This may include name, contact details, function, details of your professional experience and information about your current and past interactions with E-Rare. We process this information in light of our legitimate interests, namely to maintain and administer our relationship with you through our newsletter and inform you about forthcoming funding opportunities for rare diseases researchers, relevant events and important issues related to rare disases. Altogether you receive our newsletter no more than four times a year.  
 
The "Looking for collaborations" database is available directly from E-Rare website only to the registred persons. The sole purpose of this module is to provide opportunity to the registred members to find potential collaborators/partners for their research projects. Each new subscription is verified and accepted manually. The access to the database is protected and the information secured. To prevent unauthorized access, maintain data accuracy, and ensure the correct use of information, we have put in place appropriate physical, electronic, and managerial procedures to safeguard and secure the information subscribers provide in the "Looking for collaborations" module. The contact between members of the "Looking for collaborations" database is allowed only through secured form and the e-mail addresses remain confidential.
 
We hope you enjoy our newsletter and "Looking for collaborations" module. However, you have a right to oppose our collection and use of your personal information.
 
If you wish to remove your profile from the "Looking for collaborations" module, please contact us at: erarecoord@agencerecherche.fr
 
For our newsletter you can simply unsubscribe by clicking the "unsubscribe" link below.
 
Thank you!
E-Rare Team
www.e-rare.eu contact@erare.eu

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