The European Rare Disease Models & Mechanisms Network (RDMM-Europe) has been established by Solve-RD – an EU-funded research project. The overall aim is to boost research in rare diseases, discover new disease-causing genes and obtain evidence for pathogenicity through functional validation.

For more information, visit the following website.

The European Rare Disease Models & Mechanisms Network (RDMM-Europe) has been established by Solve-RD – an EU-funded research project. The overall aim is to boost research in rare diseases, discover new disease-causing genes and obtain evidence for pathogenicity through functional validation.

For more information, visit the following website.

A call on research and innovation's actions will be launched on July 18, 2019. IMI projects aim at accelerating the medicines development process, generating new scientific insights, and developing resources for open use by the research community. The topics of this call are related to integrated research platforms, digital clinical trials, immune-mediated diseases, medicines safety, brain disorders, blockchain, antimicrobial resistance.

FInd more information on the following link.

The International Summer School on Rare Disease Registries and FAIRification of Data is a part of a series of training activities proposed by the European Joint Programme on Rare Diseases (EJP RD) which will take place at the Istituto Superiore di Sanità, Rome, Italy. The first module “Rare Disease Registries” starts on September 23 till September 25, 2019. The second module “FAIRification of data”, starts on September 26 till September 27, 2019.

Onlne registration deadline is June 20th, 2019.

Find more information on the following link.

The European Joint Programme on Rare Diseases (EJP RD), which is the successor of E-Rare launches the Joint Transnational Call 2019. The call will  open officially in December. This year projects should focus on accelerated diagnosis and/or exploration of disease progression and mechanisms of rare diseases. More info under www.ejprarediseases.org

PedCRIN call for multinational clinical studies in children and neonates

PedCRIN call for multinational clinical studies in children and neonates

ECRIN has launched a call for pilot clinical studies to receive trial management support from the Paediatric Clinical Research Infrastructure Network (PedCRIN) project. The goal is to support the multinational extension of paediatric studies on medicinal products having already secured funding in the coordinating country. The 18 member countries of the PedCRIN consortium are eligible to apply.

Children are still an understudied patient population. Clinical studies are needed to generate evidence supporting medical practice in children and neonates, and international cooperation is critical to obtain rapid and robust results optimizing healthcare strategies. However, conducting multinational paediatric clinical studies requires adequate infrastructure. The PedCRIN project is funded by the European Commission to upgrade the ECRIN infrastructure, through the development of a paediatric module.

The present call for application is intended to select, based on scientific excellence and evidence for feasibility, multi-national investigator-initiated paediatric or neonatal interventional clinical studies on medicinal products. The funding of the study should be already secured in the coordinating country, including the study coordination tasks (study design, protocol development, statistical plan and analysis, data management, safety management, general coordination). The PedCRIN funding will therefore be used to support study management tasks in countries other than the coordinating country3, enabling multinational patient recruitment.

Deadline for application: 2nd May 2017

For more information, see the call page

E-Rare 2012 - Created by Toussaint Biger