Orphanet (www.orpha.net) is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases.

To mark its 20th anniversary, the Orphanet website is undergoing a complete makeover, starting with the look and feel of the site.

 

E-Rare associates with Blackswan Foundation to co-organize 4th International Congress on Reaserch of Rare and Orphan Diseases - RE(ACT) 2018.

The congress will take place from 7-10 of March 2018 in Bologna, Italy.

 

European Medicines Agency has published the final guidance document for applicants to Horizon 2020 topic “New therapies for rare diseases” on the EMA website. Find more information HERE

EURORDIS Award: submit a nomiation!

EURORDIS Award: submit a nomiation!

Do you know an inspiring individual making a difference for the rare disease community? Nominate them for a EURORDIS Award!
The EURORDIS Awards acknowledge the outstanding contributions of patient advocacy groups, volunteers, scientists, companies, media, and policy makers toward reducing the impact of rare diseases on peoples’ lives.

See nomination criteria and vote here. Votes close on 31st October 2016!

E-Rare 2012 - Created by Toussaint Biger