PARADIGM, a collaborative IMI project that aims to make meaningful patient engagement in medicines development a reality. The objective is to develop processes and tools for three key decision-making points: research priority setting, design of clinical trials and early dialogue with regulators and HTA bodies. Share your opinion and experience on patient engagement NOW! Learn more HERE

 

The CORBEL Open Call invites researchers to apply to access technologies and services from more than 20 facilities from 10 different research infrastructures across Europe.
Learn more HERE

 

The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. See the publication HERE.

EURORDIS Award: submit a nomiation!

EURORDIS Award: submit a nomiation!

Do you know an inspiring individual making a difference for the rare disease community? Nominate them for a EURORDIS Award!
The EURORDIS Awards acknowledge the outstanding contributions of patient advocacy groups, volunteers, scientists, companies, media, and policy makers toward reducing the impact of rare diseases on peoples’ lives.

See nomination criteria and vote here. Votes close on 31st October 2016!

E-Rare 2012 - Created by Toussaint Biger