The European Rare Disease Models & Mechanisms Network (RDMM-Europe) has been established by Solve-RD – an EU-funded research project. The overall aim is to boost research in rare diseases, discover new disease-causing genes and obtain evidence for pathogenicity through functional validation.

For more information, visit the following website.

The European Rare Disease Models & Mechanisms Network (RDMM-Europe) has been established by Solve-RD – an EU-funded research project. The overall aim is to boost research in rare diseases, discover new disease-causing genes and obtain evidence for pathogenicity through functional validation.

For more information, visit the following website.

A call on research and innovation's actions will be launched on July 18, 2019. IMI projects aim at accelerating the medicines development process, generating new scientific insights, and developing resources for open use by the research community. The topics of this call are related to integrated research platforms, digital clinical trials, immune-mediated diseases, medicines safety, brain disorders, blockchain, antimicrobial resistance.

FInd more information on the following link.

The International Summer School on Rare Disease Registries and FAIRification of Data is a part of a series of training activities proposed by the European Joint Programme on Rare Diseases (EJP RD) which will take place at the Istituto Superiore di Sanità, Rome, Italy. The first module “Rare Disease Registries” starts on September 23 till September 25, 2019. The second module “FAIRification of data”, starts on September 26 till September 27, 2019.

Onlne registration deadline is June 20th, 2019.

Find more information on the following link.

The European Joint Programme on Rare Diseases (EJP RD), which is the successor of E-Rare launches the Joint Transnational Call 2019. The call will  open officially in December. This year projects should focus on accelerated diagnosis and/or exploration of disease progression and mechanisms of rare diseases. More info under www.ejprarediseases.org

EMA consultation on the proposal of a collaboration framework with Academia

EMA consultation on the proposal of a collaboration framework with Academia

The EMA calls for Academia participation! The European Medicines Agency, in order to implement the strategic priority of establishing a greater collaboration with Academia, is initiating a consultation process with the following objectives:

1.    explore opportunities  to better support  Academia in generating new medicines that meet regulatory standards;
2.    channel Academia’s advanced knowledge into the regulatory environment;
3.    assess the degree of awareness among Academics of the existing activities and incentives provided by regulators to support medicine development;
4.    refine regulators’ understanding  of Academia’s needs and expectations and develop a methodology for collaboration.

You are invited to participate to this process by answering a brief questionnaire that also provides space for comments and suggestions.
Please click on the following link to access the questionnaire: https://www.surveymonkey.co.uk/r/EMA_Academia_consultation

Your input is very valuable and will contribute to the achievement of the above objectives. Before you start answering the questionnaire, we recommend you to read the brief background paper that provides an overview of the issues at stake.
The questionnaire is composed of 12 questions and it should take approximately 10-15 minutes to complete.

The deadline for completing the on-line questionnaire is 15 April 2016.

If you would like to send to EMA a separate written contribution, please send it to Academia-consultation[at]ema.europa.eu specifying if it is a personal contribution or on behalf of your Organisation.

The data and contributions collected will be analysed and the results will be communicated to the respondents who will have identified themselves during this initial consultation.

E-Rare 2012 - Created by Toussaint Biger