News & Media

In April 2016 the Italian Telethon Foundation is launching a pilot project for the analysis of undiagnosed genetic diseases! The Telethon Undiagnosed Diseases Program (UDP) pursues the goal of providing a diagnosis to pediatric patients with a genetic disease without a name. This task will be...
European Medicines Agency has published the final guidance document for applicants to Horizon 2020 topic “New therapies for rare diseases” on the EMA website. This document is specifically targeted to academic applicants to Horizon 2020 with the aim to outline some regulatory concepts and the time-...
Join us in making the voice of rare diseases heard 29 February 2016 is Rare Disease Day! Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Since  Rare  Disease  Day  was  first  launched  by  EURORDIS  and...
The EMA calls for Academia participation! The European Medicines Agency, in order to implement the strategic priority of establishing a greater collaboration with Academia, is initiating a consultation process with the following objectives: 1.    explore opportunities  to better support  Academia...
ECRD 2016: The European Conference on Rare Diseases & Orphan ProductsPatient groups, academics, health care professionals and all other interested parties having conducted research or studies on rare diseases or public health projects are encouraged to submit a poster abstract to the ECRD 2016...
The 3rd edition of the RE(ACT) Congress – International Congress on Research of Rare and Orphan Diseases will be held from 9th to 12th March 2016 at the Crowne Plaza Barcelona – Fira Center in Barcelona, Spain. This congress is jointly organized by the Blackswan Foundation and E-Rare. Preferential...
The eighth E-Rare joint call for funding multilateral research projects on rare diseases (JTC2016) on ‘Clinical research for new therapeutic uses of already existing molecules (repurposing) in rare diseases’ was launched on the 7th of December, 2015. The following 15 countries participate in this...
EATRIS ERIC, the European Infrastructure for Translational Medicine, specialises in advancing medicines safely into clinical development. With over 75 leading academic translational research institutions across Europe, EATRIS can find your partner with specialised facilities and long-standing...
A Partner for Multinational Trial ManagementManaging a multinational clinical trial raises multiple challenges for investigators and sponsors. ECRIN, a non-profit research infrastructure, helps organisations to facilitate trials by coordinating various management tasks (regulatory and ethical...
The eighth E-Rare joint call for funding multilateral research projects on rare diseases (JTC2016) will be open on the 7th of December, 2015. The following 14 countries intend to participate in this call: Austria, Canada (including Quebec), France, Germany, Hungary, Israel, Italy, Latvia, Poland,...

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E-Rare 2012 - Created by Toussaint Biger