The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. See the publication HERE.

We are glad to invite you to the 4th edition of the International congress of research on rare and orphan diseases that will be held in Bologna (Italy), from 7th to 10th March 2018.

It will be a moment of interaction, dialogue, study and development on issues related to rare diseases research.
Visit the website for more information on the program and to register taking advantage of the early registration fee! http://bit.ly/REACTCongress2018

 

News & Media

The pre-announcement of the 10th E-Rare joint call for funding multilateral research projects on rare diseases 2018 "Transnational research projects on hypothesis-driven use of multi-omic integrated approaches for discovery of disease causes and/or functional validation in the context of...
Radiz, the Rare Disease Initiative Zurich, is a joint action of the University of Zurich, the Children’s Hospital Zurich and the University Hospital Zurich, aimed at establishing a unique clinical research priority program in the field of rare diseases. It is meant to combine basic and clinical...
The European Commission's Joint Research Centre (DG JRC), together with DG SANTE, is developing the EU Rare Diseases Registries Platform. The Platform aims to cope with the enormous fragmentation of RD data contained in RD patient registries across Europe by promoting EU-level standards for data...
The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. IRDiRC, officially launched in 2011, was originally conceived with two main goals: to contribute to the development of 200 new therapies and the means to diagnose most rare...
  The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. IRDiRC, officially launched in 2011, was originally conceived with two main goals: to contribute to the development of 200 new therapies and the means to diagnose most rare...
Orphanet (www.orpha.net) is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases. Orphanet aims to provide high-quality information on rare diseases, and ensure equal access to knowledge for all...
ECRIN has launched a call for pilot clinical studies to receive trial management support from the Paediatric Clinical Research Infrastructure Network (PedCRIN) project. The goal is to support the multinational extension of paediatric studies on medicinal products having already secured funding in...
In December 2015 E-rare launched the eigth E-Rare joint call (JTC 2016) for funding multilateral research projects on rare diseases on “Clinical research for new therapeutic uses of already existing molecules (repurposing) in rare diseases”. Fifteen countries joined this call: Austria, Belgium,...
At the occasion of the 10th anniversary of E-Rare, we are glad to share with you short movies on research projects funded by E-Rare. In this video, Dr Raul Estevez explain the project CLC & MLC, ‘CLC chloride channels and Megalencephalic leukoencephalopathy: molecular mechanisms and...
At the occasion of the 10th anniversary of E-Rare, we are glad to share with you short movies on research projects funded by E-Rare. In this video, Dr Marjon Pasmooij explain the project Splice-EB, ‘Splicing therapies for Dystrophic Epidermolysis Bullosa’.

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E-Rare 2012 - Created by Toussaint Biger