The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. See the publication HERE.

News & Media

Dear Colleagues, As you may have heard, the new General Data Protection Regulation (GDPR) comes into effect May 25, 2018. Your privacy comes first!   As you are part of E-Rare community and has expressed interest in our calls, conferences and rare diseases related news OR registered into our "...
Rome (Italy) 19 January – The International Consortium for Personalised Medicine (ICPerMed), announced today the publication of their first "Best Practice in Personalised Medicine" Award 2018. The objective of this award is to encourage and disseminate best practice examples in personalised...
We wish you a #RAREvolutionary Happy New Year 2018! To celebrate the new year, we decided to offer for a limited duration a special registration rate for the RE(ACT) Congress 2018 held in Bologna, Italy (7th – 10th March 2018). The special price is 250 Euro (= 300 CHF) only payable by credit...
The pre-announcement of the 10th E-Rare joint call for funding multilateral research projects on rare diseases 2018 "Transnational research projects on hypothesis-driven use of multi-omic integrated approaches for discovery of disease causes and/or functional validation in the context of...
Radiz, the Rare Disease Initiative Zurich, is a joint action of the University of Zurich, the Children’s Hospital Zurich and the University Hospital Zurich, aimed at establishing a unique clinical research priority program in the field of rare diseases. It is meant to combine basic and clinical...
The European Commission's Joint Research Centre (DG JRC), together with DG SANTE, is developing the EU Rare Diseases Registries Platform. The Platform aims to cope with the enormous fragmentation of RD data contained in RD patient registries across Europe by promoting EU-level standards for data...
The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. IRDiRC, officially launched in 2011, was originally conceived with two main goals: to contribute to the development of 200 new therapies and the means to diagnose most rare...
  The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. IRDiRC, officially launched in 2011, was originally conceived with two main goals: to contribute to the development of 200 new therapies and the means to diagnose most rare...
Orphanet (www.orpha.net) is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases. Orphanet aims to provide high-quality information on rare diseases, and ensure equal access to knowledge for all...
ECRIN has launched a call for pilot clinical studies to receive trial management support from the Paediatric Clinical Research Infrastructure Network (PedCRIN) project. The goal is to support the multinational extension of paediatric studies on medicinal products having already secured funding in...

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