News & Media

Join us in making the voice of rare diseases heard 29 February 2016 is Rare Disease Day! Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. Since  Rare  Disease  Day  was  first  launched  by  EURORDIS  and...
The EMA calls for Academia participation! The European Medicines Agency, in order to implement the strategic priority of establishing a greater collaboration with Academia, is initiating a consultation process with the following objectives: 1.    explore opportunities  to better support  Academia...
The 3rd edition of the RE(ACT) Congress – International Congress on Research of Rare and Orphan Diseases will be held from 9th to 12th March 2016 at the Crowne Plaza Barcelona – Fira Center in Barcelona, Spain. This congress is jointly organized by the Blackswan Foundation and E-Rare. Preferential...
The eighth E-Rare joint call for funding multilateral research projects on rare diseases (JTC2016) on ‘Clinical research for new therapeutic uses of already existing molecules (repurposing) in rare diseases’ was launched on the 7th of December, 2015. The following 15 countries participate in this...
EATRIS ERIC, the European Infrastructure for Translational Medicine, specialises in advancing medicines safely into clinical development. With over 75 leading academic translational research institutions across Europe, EATRIS can find your partner with specialised facilities and long-standing...
A Partner for Multinational Trial ManagementManaging a multinational clinical trial raises multiple challenges for investigators and sponsors. ECRIN, a non-profit research infrastructure, helps organisations to facilitate trials by coordinating various management tasks (regulatory and ethical...
The eighth E-Rare joint call for funding multilateral research projects on rare diseases (JTC2016) will be open on the 7th of December, 2015. The following 14 countries intend to participate in this call: Austria, Canada (including Quebec), France, Germany, Hungary, Israel, Italy, Latvia, Poland,...
In collaboration with EMA, E-Rare will organize a workshop dedicated to Interactions between EMA and RD researchers on pre-licensing activities. The workshop will take place from 09:00 to 16:00 on the 9 of March 2016 in Barcelona, before the official start of the RE(ACT) meeting. It will be open...
In order to access to clinical compounds, pharmaceutical companies like AstraZeneca or Pfizer, are developping programs to propose number of their molecules that could be used in repurposing studies. AstraZeneca Open innovation Program In addition to marketed and Ph 3 compounds listed on the...
It is a pleasure to announce the 3rd international congress on research of rare and orphan diseases to be held at the Crowne Plaza Barcelona – Fira Center in Barcelona, Spain, from 9th to 12th March 2016 a superb setting for stimulating learning, exchanges and networking. This congress is jointly...

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E-Rare 2012 - Created by Toussaint Biger