PARADIGM, a collaborative IMI project that aims to make meaningful patient engagement in medicines development a reality. The objective is to develop processes and tools for three key decision-making points: research priority setting, design of clinical trials and early dialogue with regulators and HTA bodies. Share your opinion and experience on patient engagement NOW! Learn more HERE

 

The CORBEL Open Call invites researchers to apply to access technologies and services from more than 20 facilities from 10 different research infrastructures across Europe.
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The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. See the publication HERE.

10 years of E-Rare video: the project Splice-EB by Marjon Pasmooij

10 years of E-Rare video: the project Splice-EB by Marjon Pasmooij

At the occasion of the 10th anniversary of E-Rare, we are glad to share with you short movies on research projects funded by E-Rare.

In this video, Dr Marjon Pasmooij explain the project Splice-EB, ‘Splicing therapies for Dystrophic Epidermolysis Bullosa’.

E-Rare 2012 - Created by Toussaint Biger