The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. See the publication HERE.


E-Rare associates with Blackswan Foundation to co-organize 4th International Congress on Reaserch of Rare and Orphan Diseases - RE(ACT) 2018.

The congress will take place from 7-10 of March 2018 in Bologna, Italy.

10 years of E-Rare video

10 years of E-Rare video

E-Rare has already ten years!

View the video we made at this occassion, learn more about E-Rare and see what rare diseases stakeholders think about us.



E-Rare 2012 - Created by Toussaint Biger