Funding transnational collaborative research through joint transnational calls is one of the major objectives of E-Rare. This is the most important and effective joint activity to enhance the cooperation between European scientists working on rare diseases and thus reducing the fragmentation of research in this field. E-Rare launches calls on a yearly basis. The topic and eligibility criteria are specified every year and therefore may vary from one call to the other.
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Julian Grosskreutz | Neurology University Hospital Jena Jena | Jena, Germany |
Philip Van Damme | Neurology VIB Leuven | Leuven, Belgium |
Amyotrophic Lateral Sclerosis (ALS) is a disease leading to increaing weakness of voluntary and respiratory muscles. On average only 36 months after first signs of weakness the patient dies. Patients vary considerably in rate of disease progression. About 30% of patients either live shorter than 18 months of longer than 48 months, up to 60 months. PYRAMID's primary objective is to find those factors that protect patients from a rapid disease progression. The study will compare patients who die within 18 months to patients who live beyond 48 months. These factors, e.g. genes and proteins, are then prime candidates for the development of new treatments for this fatal disease.
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For more information ABOUT E-Rare please contact:
E-Rare Coordinator
Daria JULKOWSKA
Tel.: +33(0) 1 78 09 80 78
+33(0) 6 20 14 13 81
daria.julkowska@agencerecherche.fr
Agence Nationale de la Recherche - ANR
Health & Biology Department
50 Avenue Daumesnil
75012 Paris, France