This section is dedicated to the E-Rare and all important events related to the research on rare diseases. It is being updated on a weekly basis.

Rare Disease Day 2019

Rare Disease Day 2019
Thursday, February 28, 2019

28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities. The theme for Rare Disease Day 2019 is 'Bridging health and social care'.

For most people living with a rare disease, as well as their family members or carers, the reality of daily life can include any combination of the following: collecting and taking medicines, attending appointments, participating in physical therapy, using specialist equipment and accessing various social and community support services and respite care. Managing these care-related tasks alongside their usual daily activities such as work, school and leisure time can be challenging.

For more information HERE.

E-Rare 2012 - Created by Toussaint Biger