This section is dedicated to the E-Rare and all important events related to the research on rare diseases. It is being updated on a weekly basis.

Rare Disease Day

Rare Disease Day
Monday, February 29, 2016

Join us in making the voice of rare diseases heard

29 February 2016 is Rare Disease Day! Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. 

Since  Rare  Disease  Day  was  first  launched  by  EURORDIS  and  its  Council  of  National Alliances  in  2008, thousands  of events  have  taken place  throughout  the  world  reaching hundreds of thousands of people and resulting in a great deal of media coverage.

On rarediseaseday.org you  can  find  information  about  the  thousands  of  events  happening around the world to build awareness for people living with a rare disease and their families.

We are delighted to share with you the 2016 Rare Disease Day video. The video celebrates the special moments in the lives of people living with a rare disease.

E-Rare 2012 - Created by Toussaint Biger