Join us in making the voice of rare diseases heard
29 February 2016 is Rare Disease Day! Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
Since Rare Disease Day was first launched by EURORDIS and its Council of National Alliances in 2008, thousands of events have taken place throughout the world reaching hundreds of thousands of people and resulting in a great deal of media coverage.
On rarediseaseday.org you can find information about the thousands of events happening around the world to build awareness for people living with a rare disease and their families.
We are delighted to share with you the 2016 Rare Disease Day video. The video celebrates the special moments in the lives of people living with a rare disease.