Course for health care guidelines developers on diagnosis of rare diseases
Monday, June 6, 2016
In the framework of RARE-bestpractices project (www.rarebestpractices.eu), coordinated by the National Centre for Rare Diseases (ISS) and funded by the European Commission, the Associazione per la ricerca sull'efficacia dell'assistenza sanitaria - Italian Cochrane Centre (AREAS - CCI), organize a free Course for health care guidelines developers on diagnosis of rare diseases.
The present course is part of the capacity building activities of the project RARE-Bestpractices. These activities intend to promote guideline quality standards for rare diseases across European Member States and to support the upcoming European Reference Networks and Centres of Expertise in the development of their capacity to produce and use health care guidelines on rare diseases.
The course will provide participants with the opportunity to acquire skills necessary to produce health care guidelines on diagnosis of rare diseases. The course will focus on an overview on general guideline production and specific to rare diseases. The following topics will be addressed: scope , panel choice, developing clinical questions, planning the evidence review, quality of evidence, developing and wording recommendations, implementation and dissemination. The course format consists of: lectures and small groups work/exercises.