This section is dedicated to the E-Rare and all important events related to the research on rare diseases. It is being updated on a weekly basis.

28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities. The theme for Rare Disease Day 2019 is 'Bridging health and...
The first conference on 'Personalised Medicine in Action' of the International Consortium for Personalised Medicine (ICPerMed) will take place in Berlin, Germany, on November 20-21. The ICPerMed conference 'Personalised Medicine in Action' is supported by the European Commission, the German...
BLACKSWAN Foundation in collaboration with E-RARE, both active in supporting research activities in the field of rare diseases, are pleased to announce the opening of registrations of the RE(ACT) Congress 2018, 4th international congress on research of rare and orphan diseases to be held at the...
The PROFILE project, funded by the H2020 programme of the European Union is organizing on th e23 - 25 of October 2017 in Leuven, Belgium a Bootcamp in entrepreneurial innovation in rare diseases. The following topics will be discussed: What are the key drivers and resistors for development of...
TRANSLATIONAL MEDICINE 2017 is the third bi-annual conference organised by EATRIS. This event, open to a wide range of stakeholders (pharma industry, academia, research funders), will bring together experts and key actors in translational research, to discuss current approaches and future...
The EURO-CDG-2 network, a  European research network directed towards improving diagnosis and treatment of inborn errors of glycosylation funded under the frame of E-Rare-3, is organizing the International Scientific CDG Symposium 2017  on ‘Congenital Disorders of Glycosylation and related...
Molecular screening is often a part of rare diseases research projects. If you are interested in latest developments in screening technologies and targets, the EU-Openscreen infrastructure is organizing a dedicated symposium this summer in Budapest. The European Chemical Biology Symposium 2017 (...
The 5th Rare Diseases Summer School organized by radiz – Rare Disease Initiative Zurich, will take place in the Tagungszentrum Schloss Au, Wädenswil (on lake Zurich), from June 7th to June 9th 2017. The 5th radiz Rare Diseases Summer School will focuss on a wide variety of subjects in the arena of...
On the 11th and 12th of May 2017 in Marseille, France, the EUDIPHARM Claude Bernard University, the F-CRIN labeled service platform Orphandev and the Training & Education Unit of F-CRIN’s Coordination are co-organizing the 4th edition of the "Orphan drug & rare disease - Accelerating access...
E-Rare will organize a workshop on data sharing and harmonization in order to promote those issues in the rare disease research community. The workshop will take place on the 4th of May in Berlin, Germany at the Ramada hotel and will be preceded by a poster session in the late afternoon of the 3rd...

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