This section is dedicated to the E-Rare and all important events related to the research on rare diseases. It is being updated on a weekly basis.

Rare Disease Day 2020 will be celebrated this year on Saturday the 29th of February - a fittingly rare date! Coordinated by EURORDIS in partnership with National Alliances, the aim is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients...
The International Summer School on Rare Disease Registries and FAIRification of Data is a part of a series of training activities proposed by the European Joint Programme on Rare Diseases (EJP RD) which will take place at the Istituto Superiore di Sanità, Rome, Italy. This course is composed of two...
European Joint Programme on Rare diseases (EJPRD) organises its first workshop series "Organizing & maximizing rare disease biological sample data in biobanks" to develop the capacity on data management of biobanks, allowing them to optimise operations to support the need of RD research...
28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities. The theme for Rare Disease Day 2019 is 'Bridging health and...
The first conference on 'Personalised Medicine in Action' of the International Consortium for Personalised Medicine (ICPerMed) will take place in Berlin, Germany, on November 20-21. The ICPerMed conference 'Personalised Medicine in Action' is supported by the European Commission, the German...
BLACKSWAN Foundation in collaboration with E-RARE, both active in supporting research activities in the field of rare diseases, are pleased to announce the opening of registrations of the RE(ACT) Congress 2018, 4th international congress on research of rare and orphan diseases to be held at the...
The PROFILE project, funded by the H2020 programme of the European Union is organizing on th e23 - 25 of October 2017 in Leuven, Belgium a Bootcamp in entrepreneurial innovation in rare diseases. The following topics will be discussed: What are the key drivers and resistors for development of...
TRANSLATIONAL MEDICINE 2017 is the third bi-annual conference organised by EATRIS. This event, open to a wide range of stakeholders (pharma industry, academia, research funders), will bring together experts and key actors in translational research, to discuss current approaches and future...
The EURO-CDG-2 network, a  European research network directed towards improving diagnosis and treatment of inborn errors of glycosylation funded under the frame of E-Rare-3, is organizing the International Scientific CDG Symposium 2017  on ‘Congenital Disorders of Glycosylation and related...
Molecular screening is often a part of rare diseases research projects. If you are interested in latest developments in screening technologies and targets, the EU-Openscreen infrastructure is organizing a dedicated symposium this summer in Budapest. The European Chemical Biology Symposium 2017 (...

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E-Rare 2012 - Created by Toussaint Biger