The third workshop on Orphan Product Designation and Grants will be held on Monday 10 March 2014 at the EMA, London, UK. The event is jointly organized by the European Medicines Agency (EMA), the US Food and Drug Administration (FDA) and, for the first time, the Japanese Ministry of Health, Labour...
The second edition of RE(ACT) International Congress on Research of Rare Diseases will take place in Basel, Switzerland from 5 to 8 of March 2014. In its first edition, the RE(ACT) Congress brought together almost 300 people to discuss research into rare diseases and the development of active...
The 2nd International Workshop “Rare Diseases and Orphan Drug Registries” is organised in the framework of the EPIRARE project (“European Platform for Rare Disease Registries”, co-funded by EU Commission, DG SANCO). It is open to scientists, clinicians, patients’ and parents’ Associations, policy...
"Rare Diseases and Orphan Drug Registries" course organized by National Center for Rare Diseases, Istituto Superiore di Sanità,  will take place on the 16 - 20 September 2013, Rome, Italy. Important: Deadline for application submission is 30 of July 2013. The course will take the participants...
The course is organized by the National Centre for Rare Diseases. It will take place on the 8 -12 July, 2013 in the Italian National Institute of Health, Rome, Italy. The course will take the participants through the development process of clinical practice guidelines. It does this by providing the...
The event is organized by the European Surveillance of Congenital Anomalies Association, EUROCAT on the 14 of June 2013 in Esplanade Zagreb Hotel, Zagreb, Croatia. The meeting will continue in the successful tradition of excellent conferences that cover the latest developments in the field of...
This international conference (now in its 46th year) organized by the European Society of Human Genetics is a forum for all workers in human and medical genetics to review advances and develop research collaborations. The conference has become one of the premier events in the field of human...
International Rare Diseases Research Consortium Conference 2013 will take place on 16 - 17 April 2013 in Dublin, Ireland. The conference aims to gather stakeholders from across the globe active in the rare disease area. A top-level programme with a clear research focus will take stock of advances...
The European Platform for Patients' Organizations, Science and Industry (EPPOSI) organizes a special one day multi-stakeholder workshop to discuss the outcomes of its research programme on health technology asessment and understanding the importance of societal benefits for EU citizens health but...
10th Asia-Pacific Conference on Human Genetics 2012 (APCHG2012) with the theme “Genetic and Genomic Medicine: Working Together Towards Health For AllThe APCHG2012 will be held in Kuala Lumpur, Malaysia and is organised by the Asia-Pacific Society of Human Genetics and co-hosted by the Medical...

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E-Rare 2012 - Created by Toussaint Biger