The International Rare Diseases Research Consortium (IRDiRC) will organize its next conference in Shenzhen, China, with the collaboration of the Beijing Genomics Institute (BGI). The conference aims to gather stakeholders active in the rare disease area from across the globe. It will be held on 7-9...
International Conference - Rare Diseases Europe's Challange will take on the 31st of October 2014 in Aula dei Gruppi Parlamentari, Camera dei Deputati - 74, via di Campo Marzio, Rome, Italy. During the International Conference, organized by the National Center for Rare Diseases under the auspices...
"The Translational Science of Rare Diseases: From Rare to Care II" meeting will take place from the 8 to 10 of October 2014 in Herrenchiemsee, Germany. The meeting follows a tradition initiated in 2012, when the founding conference with the same focus – established by Days of Molecular Medicine –...
The 9th International Conference on Rare Diseases and Orphan Drugs (ICORD) will take place on the 7-9 of October 2014 in Ede, The Netherlands. ICORD is an International Society for all individuals active in rare diseases and/or orphan drugs, including health care, research, academic, industry,...
The European Reference Networks Conference is organized by DG SANCO on 23rd of June in Brussels. It will bring together highly specialised healthcare providers, experts, national authorities, decision–makers, and independent bodies with experience in the assessment and evaluation of healthcare...
The third workshop on Orphan Product Designation and Grants will be held on Monday 10 March 2014 at the EMA, London, UK. The event is jointly organized by the European Medicines Agency (EMA), the US Food and Drug Administration (FDA) and, for the first time, the Japanese Ministry of Health, Labour...
The second edition of RE(ACT) International Congress on Research of Rare Diseases will take place in Basel, Switzerland from 5 to 8 of March 2014. In its first edition, the RE(ACT) Congress brought together almost 300 people to discuss research into rare diseases and the development of active...
The 2nd International Workshop “Rare Diseases and Orphan Drug Registries” is organised in the framework of the EPIRARE project (“European Platform for Rare Disease Registries”, co-funded by EU Commission, DG SANCO). It is open to scientists, clinicians, patients’ and parents’ Associations, policy...
"Rare Diseases and Orphan Drug Registries" course organized by National Center for Rare Diseases, Istituto Superiore di Sanità,  will take place on the 16 - 20 September 2013, Rome, Italy. Important: Deadline for application submission is 30 of July 2013. The course will take the participants...
The course is organized by the National Centre for Rare Diseases. It will take place on the 8 -12 July, 2013 in the Italian National Institute of Health, Rome, Italy. The course will take the participants through the development process of clinical practice guidelines. It does this by providing the...

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E-Rare 2012 - Created by Toussaint Biger