This section is dedicated to the E-Rare and all important events related to the research on rare diseases. It is being updated on a weekly basis.

The International Summer School on Rare Disease Registries and FAIRification of Data is a part of a series of training activities proposed by the European Joint Programme on Rare Diseases (EJP RD) which will take place at the Istituto Superiore di Sanità, Rome, Italy. This course is composed of two...
European Joint Programme on Rare diseases (EJPRD) organises its first workshop series "Organizing & maximizing rare disease biological sample data in biobanks" to develop the capacity on data management of biobanks, allowing them to optimise operations to support the need of RD research...
28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities. The theme for Rare Disease Day 2019 is 'Bridging health and...
The first conference on 'Personalised Medicine in Action' of the International Consortium for Personalised Medicine (ICPerMed) will take place in Berlin, Germany, on November 20-21. The ICPerMed conference 'Personalised Medicine in Action' is supported by the European Commission, the German...
The PROFILE project, funded by the H2020 programme of the European Union is organizing on th e23 - 25 of October 2017 in Leuven, Belgium a Bootcamp in entrepreneurial innovation in rare diseases. The following topics will be discussed: What are the key drivers and resistors for development of...
TRANSLATIONAL MEDICINE 2017 is the third bi-annual conference organised by EATRIS. This event, open to a wide range of stakeholders (pharma industry, academia, research funders), will bring together experts and key actors in translational research, to discuss current approaches and future...
The EURO-CDG-2 network, a  European research network directed towards improving diagnosis and treatment of inborn errors of glycosylation funded under the frame of E-Rare-3, is organizing the International Scientific CDG Symposium 2017  on ‘Congenital Disorders of Glycosylation and related...
Molecular screening is often a part of rare diseases research projects. If you are interested in latest developments in screening technologies and targets, the EU-Openscreen infrastructure is organizing a dedicated symposium this summer in Budapest. The European Chemical Biology Symposium 2017 (...
The 5th Rare Diseases Summer School organized by radiz – Rare Disease Initiative Zurich, will take place in the Tagungszentrum Schloss Au, Wädenswil (on lake Zurich), from June 7th to June 9th 2017. The 5th radiz Rare Diseases Summer School will focuss on a wide variety of subjects in the arena of...
On the 11th and 12th of May 2017 in Marseille, France, the EUDIPHARM Claude Bernard University, the F-CRIN labeled service platform Orphandev and the Training & Education Unit of F-CRIN’s Coordination are co-organizing the 4th edition of the "Orphan drug & rare disease - Accelerating access...

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